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England and Wales High Court (Family Division) Decisions |
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You are here: BAILII >> Databases >> England and Wales High Court (Family Division) Decisions >> Mid Yorkshire Hospitals NHS Trust v NB & Anor [2022] EWHC 3682 (Fam) (09 December 2022) URL: http://www.bailii.org/ew/cases/EWHC/Fam/2022/3682.html Cite as: [2022] EWHC 3682 (Fam) |
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Strand, London, WC2A 2LL |
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B e f o r e :
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MID YORKSHIRE HOSPITALS NHS TRUST |
Applicant |
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NB (BY HIS LITIGATION FRIEND, THE OFFICIAL SOLICITOR) |
1st Respondent |
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AB |
2nd Respondent |
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Nageena Khalique KC (instructed by the Official Solicitor) for the 1st Respondent
Ben McCormack (instructed by Irwin Mitchell) for the 2nd Respondent
Hearing dates: 7th December 2022
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Crown Copyright ©
Mrs Justice Arbuthnot:
Introduction
Mr B – Portrait
The events of 3rd September 2021 and treatment thereafter
Professor Wade
Dr Hanrahan
The family and friends' evidence
Law
"(1) In determining for the purposes of this Act what is in a person's best interests, the person making the determination must not make it merely on the basis of (a) the person's age or appearance or (b) a condition of his, or an aspect of his behaviour, which might lead others to make unjustified assumptions about what might be in his best interests.
(2) The person making the determination must consider all the relevant circumstances and, in particular, take the following steps.
(3) He must consider
(a) whether it is likely that the person will at some time have the capacity in relation to the matter in question, and
(b) if it appears likely that he will, when that is likely to be.
(4) He must, so far as reasonably practicable, permit and encourage the person to participate, or improve his ability to participate, as fully as possible in any act done for him and any decision affecting him.
(5) Where the determination relates to life-sustaining treatment he must not, in considering whether the treatment is in the best interests of the person concerned, be motivated by a desire to bring about his death.
(6) He must consider, so far as is reasonably ascertainable, (a) the person's past and present wishes and feelings (and, in particular, any relevant written statement made by him when he had capacity); (b) the beliefs and values that would be likely to influence his decision if he had capacity, and (c) the other factors that he would be likely to consider if he were able to do so.
(7) He must take into account, if it is practicable and appropriate to consult them, the views of (a) anyone named by the person as someone to be consulted on the matter in question or on matters of that kind; (b) anyone engaged in caring for the person or interested in his welfare; (c) any donee of a lasting power of attorney granted by the person, and (d) any deputy appointed by the court."
"[22] Hence the focus is on whether it is in the patient's best interests to give the treatment, rather than on whether it is in his best interests to withhold or withdraw it. If the treatment is not in his best interests, the court will not be able to give its consent on his behalf and it will follow that it will be lawful to withhold or withdraw it. Indeed, it will follow that it will not be lawful to give it. It also follows that (provided of course that they have acted reasonably and without negligence) the clinical team will not be in breach of any duty towards the patient if they withhold or withdraw it."
…
"[39] The most that can be said, therefore, is that in considering the best interests of this particular patient at this particular time, decision-makers must look at his welfare in the widest sense, not just medical but social and psychological; they must consider the nature of the medical treatment in question, what it involves and its prospects of success; they must consider what the outcome of that treatment for the patient is likely to be; they must try and put themselves in the place of the individual patient and ask what his attitude towards the treatment is or would be likely to be; and they must consult others who are looking after him or are interested in his welfare, in particular for their view of what his attitude would be."
At paragraph 45 she added:
"[45] The purpose of the best interests' test is to consider matters from the patient's point of view. That is not to say that his wishes must prevail, any more than those of a fully capable patient must prevail. We cannot always have what we want. Nor will it always be possible to ascertain what an incapable patient's wishes are… But insofar as it is possible to ascertain the patient's wishes and feelings, his beliefs and values or the things which are important to him, it is those which should be taken into account because they are a component in making the choice which is right for him as an individual human being"
a) Article 2 (the right to life). As MacDonald J noted in Re Y (No 1) [2015] EWHC 1920 (Fam) at paragraph 37, "the right to life under Art 2 of the ECHR imposes a positive obligation to provide life sustaining treatment, that obligation does not extend to providing such treatment if that treatment would be futile in nature and where responsible medical opinion is of the view that the treatment would not be in the best interests of the patient concerned (see R (Burke) v The General Medical Council [2005] EWCA 1003)".
b) Article 3 (protection from inhuman or degrading treatment)
c) Article 8 (the right to respect for a private and family life). As the ECtHR recognised in Burke v UK [2006] (App 19807/06) ECHR 1212:"the presumption of domestic law is strongly in favour of prolonging life where possible, which accords with the spirit of the Convention".
"235. Able-bodied people frequently feel (even if they do not say so) that disability invariably restricts the enjoyment of life. With the growth in understanding about disability in recent years, however, has come an awareness that people with disability often experience profound enjoyment of life, within the limitations that their disability may impose..."
The factors are set out at his paragraph 9: I set it out in full below:
"The questions which require determination on this application are:
i) What is PL's current condition? What is her level of consciousness or cognisance? What is her awareness of the world around her?
ii) Does PL have the mental capacity to make a decision about the continuance of CANH? If she is assessed to lack capacity presently, is there a prospect that she could develop the capacity to make that decision?
iii) If she lacks capacity, is it in her best interests that I should confirm the continuing delivery of CANH? In answering this question, I should consider:
iv) Her previous stated views on life-support, and on sustaining life artificially, in the event that she is totally dependent on others, and incapable of functioning in many essential domains of her life;
a) The quality of her life at present; whether there is any or any significant enjoyment in her life; whether she experiences pain and/or distress, and if so how that is managed;
b) Her prognosis if CANH were to continue for the foreseeable future; whether there is any real prospect of recovery of any of her functions and improvement in the quality of her life;
c) The prognosis for PL if CANH were to be discontinued: what would the palliative care package include, in the event that the CANH were to be discontinued, and where would her palliative treatment optimally be delivered (i.e. would she need to move from her current residential care home?);
d) The prognosis for PL if I were to authorise the discontinuance of nutrition but not hydration;
e) The views, wishes and feelings of the family and her carers;
f) PL's dignity;
g) The sanctity of life generally.
a. First, I am to consider Mr B's previously stated views on life-support and sustaining life artificially. Unfortunately, the family have made it clear that Mr B had not stated his views about what he would like to happen in the circumstances in which he now finds himself to be in. At his fairly young age it is not surprising that he had not given it any thought.
b. Second, I am to consider Mr B's enjoyment of his life as it is now. There is no evidence that he enjoys his current life. All the evidence is that he has no awareness of where he is or who is with him or what has happened to him.
c. Third, another consideration is Mr B's prognosis if clinically assisted nutrition and hydration were to continue. The consensus is that he would live for approximately seven years. There would be no prospect of recovery of any of his functions. His quality of life would remain as it is currently. At best his minimally conscious state may improve such that he would remain at the very lowest end of the minimally conscious state but that would mean he may feel pain and discomfort. There is no suggestion that even at best, he will ever recognise his family again. His physical presentation would get worse.
d. Fourth, I must consider the prognosis for Mr B if clinically assisted nutrition and hydration were discontinued. He would die within a few weeks. A palliative care package has been developed and was provided to Dr Hanrahan who had no suggestions to make which would have improved it. Understandably the family have not been able to consider it in any detail.
Having considered the plan with care, it seems thorough, well thought through and sensitive involving a hospice and a continuing high standard of care. Significantly it takes into account Mr B's cultural and religious needs. I asked whether the six children and their mother would be allowed to visit their father together. I am assured that this will be considered with sensitivity by the hospice.
e. Fifth, there is no suggestion here by the family that nutrition should be withdrawn but not hydration and the medical professionals are of the view that neither should continue.
f. Sixth, I must take into account the significant issue of the views of the family and of the medical professionals caring for Mr B. The views of the clinicians caring for Mr B are to be found in the bundle of evidence I have been provided with. Their views are supported by the independent evidence of Professor Wade and Dr Hanrahan which I have summarised above.
The family's views have been set out in a compelling way in their statements and in the evidence of SB. Their feelings of loss and bewilderment about what has befallen this close family are palpable. They say this strong man with a fighting spirit would fight to remain with his family as long as he is able to. They may wish for more time to be given to their father to see if recovery is possible, but the medical professionals are clear that he will never recover. The best that can be expected is a lesser minimally conscious state where he might feel pain. That is not the recovery the family wish for.
In terms of the time in which may have recovered, he has been in this vegetative state for just under 15 months. Sadly, there have been no first signs of recovery but there have been reflexive responses. These have had the effect of providing hope to a family watching and wishing for any sign of recovery but he will never return home and the greatest sadness is that he will never recognise his family again.
He will never be again the man he was. Their wishes and feelings are about bringing him back as he was. As Dr Hanrahan said it is hope that they have but it will not be fulfilled.
g. Seventh, dignity, it is hard to see how Mr B has any dignity in his current state. He has all his needs taken care of and is punctured by tubes which bring him nutrition, hydration and medication, they help his breathing and carry away any waste products. He is prone to serious infections and has bed sores which are being managed. There is very little dignity in his circumstances.
h. Eighth, is the sanctity of life generally. Mr B is a practising Muslim, he celebrated the important festivals and went to the mosque regularly. I noted his values and beliefs are reflected in the way he has lived his life with its emphasis on family, hard wark and charity in the community. The family is concerned that taking away nutrition and hydration is speeding up the process of his death which his daughters say is "stopping what God has written for our dad". Another witness speaks about his concern that Mr B would suffer spiritually if clinically assisted nutrition and hydration was withdrawn.
In my judgment, it could be said that the life sustaining treatment delivered to Mr B thus far has already interfered with what God had written for their father. By refusing to permit the continuation of clinically assisted nutrition and hydration the Court will not be determining when Mr B will die, the time of death in those circumstances will depend on factors which have nothing to do with the Court's decision, nature will take its course.
Conclusion